From National Family Voices: Please Share Your Experience and Advocacy Stories with the Genetic Alliance

This week, Genetic Alliance, in partnership with Family Voices and The Arc launched an online questionnaire  that allows experienced family advocates to share their advocacy journey, including how they developed certain skills and created the opportunities to influence systems. We will turn those experiences into stories that will inspire and encourage others to take action to improve lives and enrich communities. […]

Delaware Reaches Settlement With DOJ, Restructures Mental Health Services

“On July 5, Delaware officials reached a settlement with the U.S. Department of Justice (DOJ), outlining mandatory reforms in the provision of mental health services at the Delaware Psychiatric Center. Settling a 3-year DOJ investigation that found Delaware in violation of the Americans With Disabilities Act and the U.S. Supreme Court’s 1999 Olmstead v. L.C. decision, the […]

New Resource: Autism Fact Sheet

From Act Early Forum on behalf of  Cheryl Rhodes:  USC UCEDD faculty, staff, and trainees have translated the CDC “Learn the Signs. Act Early” Autism Fact Sheet into multiple languages to reach underserved populations in CA. The Autism Fact Sheet is available in Arabic, Armenian, Farsi, French, German, Italian, Japanese, Korean, Mandarin, Tagalog, Thai, and […]

Delaware Parent Attends White House Event

This month’s edition of the Family Voices Newsletter featured a story on a Delaware parent, Meg Comeau, and her dealings with Medicaid. She recently shared her story at a White House Event. Click the link above to read more in the Family Voices Newsletter.

Location Change

We are pleased to announce Delaware Family Voices, Inc has received the grant to continue our work on the Delaware Family Health Information Center. As of June 1st we will be changing locations. Please see below or check out our contact page for our updated contact information: Ann Phillips Director annp@defv.org Michelle Lamers  Family Leader Trainer mlamers@defv.org […]

Heat-Related Illness

Children with special health care issues are often at a higher risk of heat related illness.  As parents, we are aware of our child’s reaction to excessive heat and take steps to get them to a cooler environment. During the summer our children are in care settings different than those during the school year.  These […]

Summer Camps

Thinking of sending your child to a camp this summer? See below for some tips from our staff at DeF2F: Tips for Camps    If this is the first time you are planning on sending your child to a summer camp, you want to be prepared. You will need current medical information for your child […]

Preparing for Emergencies and Disasters

April 2011 Emergencies and Disasters can happen with little or no warning. You need to be ready.On April 19, 2011, Governor Jack A. Markell and Safety and Homeland Security (DSHS) Secretary Lewis D. Schiliro launched the nation’s first statewide online registry designed to help Delaware citizens with special needs prepare for an emergency before it […]

‘Tis The Season: DATI Gift Giving

DATI Gift Giving: Gift-giving time is upon us already.  Are you wondering what to buy for your child with special needs?  There are resources here in Delaware to help you.  Try Delaware Assistive Technology Initiative (DATI). They have a newsletter and people to help with assistive technology advice. Delaware Assistive Technology Initiative P.O. Box 269, […]

Reader Spotlight: November

The following is an except from the November 2010 edition of our newsletter: The Voice My name is Suzanne Burnett, and I am the primary caregiver for my daughter Nicole.   She is 25 years old and is surviving every day with severe mental retardation, cerebral palsy (spastic quadriplegic), blindness, seizures, and osteoporosis. She has […]


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