Respite and Caregiving Resources
AARP
601 E Street N.W.
Washington, DC 20049
Contact Center Hours
7:00 a.m. to 11:00 p.m. ET
Monday through Friday
Toll-Free Nationwide: 1-888-OUR-AARP
(1-888-687-2277)
Toll-Free TTY: 1-877-434-7598
Toll-Free Spanish: 1-877-MAS-DE50
(1-877-627-3350)
International Calls: 1-202-434-3525
Alzheimer's Association 24/7 Helpline
Provides information and support to people with memory loss, caregivers, health care professionals and the general public. Call toll-free anytime day or night at 1-800-272-3900, TDD 1-866-403-3073. The Helpline can also give you referrals to local community programs, services and ongoing support.
Camp Fairlee Manor and Education Center
Fairlee Manor Recreation and Education Center is a beautiful, residential/recreational and respite camp on 250 sprawling acres on Fairlee Creek which offers campers from age 6 and up the opportunity to experience the joys and challenges of camp in a fully-accessible setting.
Website
Caregivers of Children from Caregiving.org
Click here for more info!
Family Caregiving 101 provides this guide on communicating with caregivers
Caregiver Guide to Special Needs Care – Care.com
Delaware Lifespan Respite Care Network
Easter Seals Delaware & Maryland’s Eastern Shore
61 Corporate Circle
New Castle DE 19720
www.delrespite.org
Application for Financial Aid
*View their newsletter
Call (888) 610-5572 or New Castle County (302) 479-1690 to speak to a specialist who can help you find care and determine if you are eligible for help in paying for it. Listing on RespiteOnline: If you have questions or would like additional information about this important statewide initiative, contact:
Debra Renz at 302-777-9757 Or email us caregiving@delrespite.org
Disability Etiquette
This section of Disability.gov was recently updated with several new resources about communicating with, and about, people with disabilities. It includes information about the importance of using person-first language.
www.disability.gov/community_life/disability_etiquette
Discharge Planning Checklist
A checklist for patients and their caregivers who are getting ready to leave a hospital, nursing home, or other health care setting. Includes a list of contact information for Area Agencies on Aging, State Health Insurance Assistance Programs and long-term care programs.
Division of Developmental Disabilities Services
Website: http://www.dhss.delaware.gov/ddds/
Toll Free Number: 1-866-552-5758
Woodbrook Professional Center
1056 South Governors Avenue, Ste. 101
Dover, DE 19904
Respite Coordinator:
Bonnie Hummer (302) 369-2180 NCC
(302) 934-8031 ext. 254 Kent & Sussex
Division of Services for Aging and Adults with Physical Disabilities
Herman M. Holloway, Sr. Campus
Main Administration Building
1901 N. DuPont Highway
New Castle, DE 19720
Phone: 1-800-223-9074
TTY: (302) 453-3837
FAX (302) 255-4445
E-mail: DSAAPDinfo@state.de.us
Easter Seals
Camp Fairlee Manor
410-778-0566
www.de.easterseals.com
Family Village Respite Resource Page
http://www.familyvillage.wisc.edu/general/respite.htm
Fatherhood.com
Dads looking for tips, hints and even deals for dads and kids – find them on the DadTalk Blog and in the "For Dads" corner
Fatherhood programs looking to get started or expand – check out the "For Programs" section
Researchers and policy makers looking for the latest on responsible fatherhood – check out our Library
Federally-funded fatherhood programs – check out a special section for Federally-funded programs here
http://www.fatherhood.gov/
The Grandparent Resource Center
Wilmington Senior Center
1901 N Market Street
Wilmington, DE 19802
(302) 651-3420
Fax: (302) 651-3470
www.wilmingtonseniorcenter.org
Managing a Special Needs Trust: A Guide for Trustees
is now available as an ebook (at Amazon.com) or a paperback at DisABILITIESBOOKS.com
Managing a Special Needs Trust: A Guide for Trustees (DisABILITIESBOOKS,2010) is a clear, understandable reference guide for anyone who is managing a special needs trust for a person with a developmental disability (beneficiary) and/or working with families on future planning. Using layman’s terms, the book explains how trust funds can be used to enrich a beneficiary’s quality of life by paying for some goods and services (e.g., vacations, clothes, recreation, special therapies) without risking the benefits of complicated government programs such as Supplemental Sercurity Income (SSI), Social Security Disability Insurance (SSDI), Medicaid, and Section 8 housing.
The Academy of Special Needs Planners called this book “…a one-stop reference for trustees…” and described the chapters about public benefits as “a thorough course...incredibly helpful.”
Mary Campbell Center
4641 Weldin Road
Wilmington, DE
(302) 762-6025
www.marycampbellcenter.org
Respite, afterschool program, preschool,
swim lessons, teen programs, summer camp
National Caregiver Support Line
Phone: 1-855-260-3274
The U.S. Department of Veterans Affairs (VA) has launched several new and enhanced services to help family caregivers of seriously ill and injured Veterans. One of these new services is a toll-free line, the National Caregiver Support Line - 1-855-260-3274. This toll-free number connects to a referral center that assists caregivers, Veterans and others seeking caregiver information. Respite, afterschool program, preschool,swim lessons, teen programs, summer camp. More information
Next Step in Care:
Family Caregivers and Health Care Professionals Working Together
Click here to view the publication
United Cerebral Palsy
700-A River Road
Wilmington, DE 19809
(302) 764-2400
www.ucp.org
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