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*Click the image above to register for Delaware's Special Needs Voluntary Registry*
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Welcome to Delaware Family Voices
Posted on 7/13/2011 by Delaware Family Voices
Thank you for visiting DE Family Voices: Family to Family Health Information Center. Please take a minute to explore our website. We have a lot of valuable resources and information. If you have any questions, please do not hesitate to contact us.
Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services for their child with special health care needs. These needs can be chronic and complex .Delaware Family Voices Family to Family Health Information Center is in a unique position to help families because we are parents who have children/youth and young adults with physical, developmental and mental health challenges. We understand the challenges families face. We have firsthand experience negotiating the maze of health care services and programs in our state. We know the issues you are facing and can help you to make informed decisions to achieve the best outcomes for your family.
We help by supporting families with children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by a federal grant.
Statewide Needs Assessment Survey: Autism Spectrum Disorders
Posted on 11/23/2011 by Delaware Family Voices
The University of Delaware Center for Disabilities Studies is conducting a statewide needs assessment survey for families and individuals with Autism Spectrum Disorders. [For more information visit our blog]
The anonymous link for families of school age children with autism (ages 3 to 21) is:
English: http://www.surveymonkey.com/s/autism_youth
Spanish: http://www.surveymonkey.com/s/autismo_joven
The anonymous link for families of adult children with autism is:
English: http://www.surveymonkey.com/s/autism_adult
Spanish: http://www.surveymonkey.com/s/autismo_adulto
The anonymous link for adults with autism (who wish to fill out the survey themselves) is:
English only: http://www.surveymonkey.com/s/autism_adult-individual
Easter Seals Announces The Community Outreach Program
Posted on 11/5/2011 by Delaware Family Voices
Easter Seals of Delaware and Maryland’s Eastern Shore has recently announced the expansion of The Community Outreach Program. The program has new services for people with disabilities, their families and caregivers. Click here for more information.
Social Security Expands Compassionate Allowances Conditions
Posted on 10/16/2011 by Delaware Family Voices
From www.socialsecurity.gov: Michael J. Astrue, Commissioner of Social Security, today announced 13 new Compassionate Allowances conditions involving the immune system and neurological disorders. The Compassionate Allowances program fast-tracks disability decisions to ensure that Americans with the most serious disabilities receive their benefit decisions within days instead of months or years [to see the full press release and the list visit our blog]
Medicare Open Enrollment:
Posted on 10/13/2011 by Delaware Family Voices
From CMS: Every year, people with Medicare get to explore new choices and pick the health and drug plans that work best for them. This year, this Open Enrollment period is starting earlier – on October 15 – and ending sooner – December 7. This gives people with Medicare a full seven weeks to compare and make decisions, and ensures that they will have essential plan materials and membership cards in hand on January 1, 2012 when new coverage starts.
For more information visit http://www.cms.gov/center/openenrollment.asp
The Centers for Medicare and Medicaid Services: Consumer Alert
Posted on 10/13/2011 by Delaware Family Voices
A message from The National Family Caregivers Association:
The Centers for Medicare and Medicaid Services (CMS) has recently become aware of a website that has the appearance of being an official government website for the Pre-Existing Condition Insurance Plan.
This new website - http: / /preexistingconditioninsuranceplan. com/ - is not maintained by any government programs and consumers are strongly urged not to submit any personal information requested by this website under the assumption that it is a government website.
CMS is taking the appropriate steps to protect consumers from being misled.
The Pre-Existing Condition Insurance Plan made available through the Affordable Care Act makes health insurance available to people who have had a problem getting insurance due to a pre-existing condition.
The Pre-Existing Condition Insurance Plan:
- Covers a broad range of health benefits, including primary and specialty care, hospital care, and prescription drugs.
- Does not charge you a higher premium just because of your medical condition.
- Does not base eligibility on income.
Connecting the Dots: Second Edition Published
Posted on 10/03/2011 by Delaware Family Voices
Delaware Family Voices is pleased to announce the publication of the second edition of Connecting the Dots. Connecting the Dots is a guide to finding services for children and adults with disabilities and special health care needs in Delaware. To obtain your copy of this helpful guide contact Delaware Family Voices today!
Spotlight on Child Health Issues: Transitioning From a Pediatric to an Adult Medical Home
Posted on 10/03/2011 by Delaware Family Voices
The NCMHI is pleased to announce the new Spotlight on Child Health Issues series—periodic supplements to the monthly Medical Homes @ Work e-Newsletter. These Spotlight editions will provide timely information and practical medical home resources for providers, families, and states regarding popular child health topics. For this first edition, the focus will be on transition from pediatric to adult care, while future editions will highlight the importance of health information technology, mental health, and oral health within the medical home.
Newborn Screening Program
Posted on 9/27/2011 by Delaware Family Voices
The Newborn Screening Program was developed in Delaware to test newborns for rare conditions that, without this screening process, would remain undetected. Many of these conditions can be better treated if they are caught early but could be harmful to your child if not treated properly. Read more on our blog [...]
Donate to Delaware Family Voices
Posted on 8/30/2011 by Delaware Family Voices
We are a 501 C 3 non profit organization and ask for your support so that we may continue our programs that serve families and their children with special health care needs.
Does your workplace participate in a United Way campaign? Then you can designate your pledge to Delaware Family Voices, Inc. through United Way’s Donor Choice Program. Write-in our name and address or code # . 12691 Contact your human resources department or local Delaware United Way agency for more detailed instructions about giving a gift to us through a Delaware United Way campaign.
Suicide Prevention Grant Announcement
Posted on 8/30/2011 by Delaware Family Voices
Delaware Family Voices was included in this joint announcement from our U.S. Senators: WILMINGTON, Del. – U.S. Senators Tom Carper and Chris Coons, and Representative John Carney today announced a total of $480,000 in federal funding for the Delaware Department of Services for Children, Youth, and its Families for the Delaware State Suicide Prevention and Early Intervention Project. The grant will expand the project’s capacity for crisis intervention and response, increase knowledge and awareness of youth suicide and prevention among secondary school teachers, administrators, students, and parents[...]
This Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by the Patient Protection and Affordable Care Act of 2010.
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