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*Click the image above to register for Delaware's Special Needs Voluntary Registry*
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Welcome to Delaware Family Voices
Posted on 7/13/2011 by Delaware Family Voices
Thank you for visiting DE Family Voices: Family to Family Health Information Center. Please take a minute to explore our website. We have a lot of valuable resources and information. If you have any questions, please do not hesitate to contact us.
Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services for their child with special health care needs. These needs can be chronic and complex .Delaware Family Voices Family to Family Health Information Center is in a unique position to help families because we are parents who have children/youth and young adults with physical, developmental and mental health challenges. We understand the challenges families face. We have firsthand experience negotiating the maze of health care services and programs in our state. We know the issues you are facing and can help you to make informed decisions to achieve the best outcomes for your family.
We help by supporting families with children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by a federal grant.
For posts like these and more, visit our blog.
NAA Announces Announces Second Launch of “Big Red Safety Box”
Posted on 2/16/2012 by Delaware Family Voices
From NAA Press Release: Boston, MA – In an ongoing effort to combat the rise in wandering-related tragedies and deaths within the autism community, the National Autism Association (NAA) announced today its second launch of “The Big Red Safety Box,” a program that provides free toolkits to caregivers with an at-risk child or adult.
[Read the entire press release]
Suicide Prevention Resources Page Added
Posted on 2/16/2012 by Delaware Family Voices
We have added a new page to the resources section of our website. This new page is Suicide Prevention Resources. Currently the page lists information on two programs: Lifelines and Let's Talk. We will continue to expand this list of resources, so stay tuned.
Not My Kid: What Every Parent Should Know
Posted on 2/11/2012 by Delaware Family Voices
The Society for the Prevention of Teen Suicide (SPTS) has produced a video called “Not My Kid: What Every Parent Should Know” which can be viewed at the following link:
http://www.sptsusa.org/parents/video/spts_parent_video.html
As per their website The mission of the Society for the Prevention of Teen Suicide is to reduce the number of youth suicides and attempted suicides by encouraging overall public awareness through the development and promotion of educational training programs for teens, parents and educators.
Donate to Delaware Family Voices
Posted on 2/09/2012 by Delaware Family Voices
We are a 501 C 3 non profit organization and ask for your support so that we may continue our programs that serve families and their children with special health care needs.
Does your workplace participate in a United Way campaign? Then you can designate your pledge to Delaware Family Voices, Inc. through United Way’s Donor Choice Program. Write-in our name and address or code # . 12691 Contact your human resources department or local Delaware United Way agency for more detailed instructions about giving a gift to us through a Delaware United Way campaign.
Project Hug
Posted on 2/10/2012 by Delaware Family Voices
This special project focused on providing warmth, smiles and hugs to children who are homeless or in foster care in Delaware has received so many wonderful items already, and we are still two weeks away from the deadline for donations. Read more information on the program on our blog...
CDC Releases New Immunization Schedule
Posted on 2/10/2012 by Delaware Family Voices
From the CDC website: Are your child's vaccinations up to date? The Schedules list the age or age range when each vaccine or series of shots is recommended. If your child (birth through 6 years old) or adolescent (age 7 through 18 years old) has missed any shots, consult the catch-up schedule AND check with the doctor about getting back on track.
Click to view the schedule.
Social Security Expands Compassionate Allowances Conditions
Posted on 10/16/2011 by Delaware Family Voices
From www.socialsecurity.gov: Michael J. Astrue, Commissioner of Social Security, today announced 13 new Compassionate Allowances conditions involving the immune system and neurological disorders. The Compassionate Allowances program fast-tracks disability decisions to ensure that Americans with the most serious disabilities receive their benefit decisions within days instead of months or years [to see the full press release and the list visit our blog]
Delaware Family Voices is pleased to announce the publication of the second edition of Connecting the Dots. Connecting the Dots is a guide to finding services for children and adults with disabilities and special health care needs in Delaware. To obtain your copy of this helpful guide contact Delaware Family Voices today!
Newborn Screening Program
Posted on 9/27/2011 by Delaware Family Voices
The Newborn Screening Program was developed in Delaware to test newborns for rare conditions that, without this screening process, would remain undetected. Many of these conditions can be better treated if they are caught early but could be harmful to your child if not treated properly. Read more on our blog [...]
Suicide Prevention Grant Announcement
Posted on 8/30/2011 by Delaware Family Voices
Delaware Family Voices was included in this joint announcement from our U.S. Senators: WILMINGTON, Del. – U.S. Senators Tom Carper and Chris Coons, and Representative John Carney today announced a total of $480,000 in federal funding for the Delaware Department of Services for Children, Youth, and its Families for the Delaware State Suicide Prevention and Early Intervention Project. The grant will expand the project’s capacity for crisis intervention and response, increase knowledge and awareness of youth suicide and prevention among secondary school teachers, administrators, students, and parents[...]
This Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by the Patient Protection and Affordable Care Act of 2010.
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