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Welcome to Delaware Family Voices
Thank you for visiting the Delaware Family Voices and our Family to Family Health Information Center website.
Caring for children with special needs is often complex, and Delaware Family Voices and the Family to Family Health Information Center is in the unique position to help. Like you, we are parents of children and young adults with physical, developmental and mental health challenges, and we have firsthand experience navigating the maze of health care services and programs in our state.
We help families of children with special needs become informed, experienced, and self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded through federal grants.
This website provides families with valuable resources and information concerning children’s healthcare needs. If you have any questions or need additional information, please contact us.
Families of Children With Genetic Conditions – Share Your Voice!
Delaware Family Voices is working with NYMAC, the New York- Mid-Atlantic Consortium for Genetics and Newborn Screening Services, on a new initiative to improve policy makers’ understanding about the multiple met and unmet health insurance and services needs of individuals living with a genetic condition. In order to be successful, we need family members to share their voice via an anonymous on-line survey on health insurance coverage and related issues for your child living with a genetic condition.
Why Your Voice is Needed Now
As the Affordable Care Act is implemented in each state, there are increased options for obtaining health insurance and for coverage and benefit requirements. The federal law identifies a set of essential health benefits (EHB) to be offered to consumers. These requirements are intended to ensure that plans are not only affordable but that they also include a comprehensive set of benefits.
Insurance coverage obtained through the ACA as well as other insurance plans you may have vary considerably. Currently we do not have information on how current plans are providing what you need to care for your child with genetic conditions. We want to help decision-makers understand what benefits are essential for children with genetic conditions and where there are gaps in current health plans.
No one knows better what children need than their parents. We need your help in filling out this survey. The results of the survey along with potential options to improve services in each state and the region will help support our continuing educational and advocacy efforts.
Please take 20 minutes of your time to complete the survey by going to the following link:
We encourage your providing specific comments that can help us provide a more personal picture for decisionmakers. Please complete by April 30, 2015.
How To Manage Your Delaware Managed Care Organization
This fact sheet, How To Manage Your Delaware Managed Care Organization, was kindly written by the attorneys with the Disability Law Program (DLP) at Community Legal Aid Society, Inc. (CLASI). Within it you will find great tips about dealing with insurance companies, and especially with Medicaid Managed Care Organizations (MCO).
We are asking that anyone who has health insurance coverage with a Delaware Medicaid MCO to please take the time to read this important fact sheet regarding your coverage and your rights with a Medicaid MCO.
Upon reading the fact sheet, if you think you may need legal counsel assistance to address your MCO issues, please contact Community Legal Aid Society directly at (800) 292-7980 (New Castle County), (800) 462-7070 (Sussex County) or (800) 537-8383 (Kent County).
Delaware Family Voices is also here to help you with your Medicaid MCO questions. Just give us a call for immediate assistance at 302-669-3030. If it appears to be an issue without a simple solution, we will refer you to Disability Law/Community Legal Aid Society for further consideration.
You can also attend the Delaware Family Voices Monthly MCO Calls, held the 2nd Tuesday of each month at 11:00 am. Within this phone call we can also address your Medicaid MCO questions. Learn more about these MCO calls here.
Again, please do not hesitate to contact either Delaware Family Voices or Community Legal Aid Society if you have questions, issues, or concerns about your Delaware Medicaid MCO plan. We are here to help.
Got Questions For Your New Delaware MCO?
We can help! Call Delaware Family Voices at (302) 669-3030. We are ready and waiting to help you with issues or questions you might have regarding Delaware Division of Medical and Medicaid Assistance (DMMA) programs. The more we know about issues with DMMA and their MCO plans, the better we can advocate for improvements and changes to better serve our families.
We especially want to hear from families with new plans if you are experiencing any kind of unexpected change in services, or if it is harder to find providers. We can also address your questions and concerns at our monthly MCO Call-ins, where representatives of state providers are often in attendance!
Here’s answers to some of the more frequently asked questions:
- Continuing care into 2015? The Continuity of Care period allows you to adjust your new Health Plan & Providers.
- How long is the Continuity of Care period? It is 90 days. Your services will continue through March 31, 2015, or until your Managed Care Provider updates your care plan or contacts you. For those with Health Options (Highmark) it has been extended through the end of April.
- Not satisfied with your new Managed Care provider? You have until March 31st to make changes by calling the Health Benefits Manager at 800-996-9969
The Delaware Division of Medical and Medicaid Assistance (DMMA) might also have the answers. Find answers to more questions about either Delaware MCO provider – Highmark Health Options and United Healthcare – at the DMMA website or by calling 877-877-8159 for United Healthcare questions or 844-325-6251 for Highmark questions.
Don’t forget – Delaware Family Voices can – and should – be your “first stop” for DMMA/MCO questions. You can also ask questions during Delaware Family Voice’s Monthly MCO Call-ins, held the second Tuesday of the month. Call 1-800-220-9875 and use Participant code 40369724# during the call time to access the call.
DMMA provides health care coverage to individuals with low incomes and those with disabilities. It also ensures access to high quality, cost effective and appropriate medial care and supportive services.
Delaware Family Voices & Federation of Families Unite!
Delaware Family Voices is now the official chapter of the Delaware Federation of Families. Delaware Family Voices would like to thank the parents of New Castle, Kent and Sussex Counties who have assisted in our collaborative efforts to create a Delaware chapter of the Federation of Families. Keep up the good work, and keep spreading the word about this exciting addition to family support resources in Delaware.
Federation of Families is a parent run group dedicated to the health and well-being of children and youth with emotional, behavioral, or mental health needs.
The primary focus of the Delaware Federation of Families chapter is to give parents and caregivers a voice in the formation of state policies, services and supports for children with mental health needs, and their families.
Are you interested in becoming a part of this movement? Anyone can join, and new members are always welcome. Members of the Delaware chapter come from all walks of life, as emotional, behavioral or mental health needs can affect anyone.
Contact Wanda Ford for more information at (302) 669-3034 or via email at firstname.lastname@example.org
Help Us Help Others In Need!
Delaware Family Voices does not charge for the services we provide. Our services are funded through federal grants and donations from the community at large. Would you like to help our efforts? Here are two ways you can help Delaware Family Voices help other families in need:
Donate By AmazonSmile
Donate By PayPal
Donating by Paypal is easy to do. Simply click on the PayPal icon and follow the steps.
Every little bit counts, whether it’s shopping through AmazonSmile, donating with PayPal, or volunteering your time. Learn more about other ways you can Donate to Delaware Family Voices and how you can help us help Delaware families of children with special health care needs.
A Message from Ann Phillips, Delaware Family Voices Executive Director:
Winter winds are blowing, heralding a frosty change in the weather. The season’s first snowflakes have already flown, winter jackets and boots are ready for snowy action, and holiday decorations light up neighborhoods. Sleds, skis and skates are being prepared for that next blanket of snow, that next snow day off from school.
Just as families prepare for the cold weather that signals winter, we at Delaware Family Voices are prepared to help you with your child’s special health care needs. With just one phone call, or one email, we are ready to assist you in whatever way we can. Don’t worry if you don’t know what to ask. We are here to listen, our objective to help you prioritize the steps you need to take for your child.
In continuation of our mission to better serve Delaware families and their children with special health care needs, we have further expanded our programs, trainings and workshops as well as our support for the Parent to Parent and Federation of Families programs. In recent weeks, we added a free Parent Respite Co-Op Program to provide families of children with special health care needs a safe, nurturing environment in which to receive respite.
Learn more about all our program offerings, including the Parent Respite Co-op Program at the Programs page. Check out our Trainings and Workshops page for a complete listing of offerings you can attend. Click on our Events Page to keep up on our latest activities.
We want to encourage family involvement in all our projects, including the website. If you have a resource you think we should consider including on the website, tell us! Our website is as much your website as it is ours. There are also several opportunities for family involvement with Delaware Family Voices. Just check out our Volunteer page to find how you too can volunteer with us and help a family in need.
Lastly, please don’t ever hesitate to call us for assistance. Refer to the Delaware Family Voices Contact page for a complete listing of staff contact information as well as our office address.
All the best,
Delaware Family Voices
Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health & Human Services, Health Resources & Services Administration, Maternal & Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by Patient Protection & Affordable Care Act of 2010.
The Statewide Family Network is funded through a grant through the Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services.