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*Click the image above to register for Delaware's Special Needs Voluntary Registry*
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The Delaware Family Voices website is undergoing a redesign. During this timeframe, this website will not be updated. Be sure to follow us at our other locations as we continue to provide services and resources for our families:
DE Family Voices Blog
DE Family Voices on Facebook
DE Family Voices on Twitter
DE Family Voices on Pinterest
We are also available by phone, e-mail and in person at the DE Family Voices office. Please visit the Contact page for the DE Family Voices staff contact information.
Thank you for your patience.
Welcome to Delaware Family Voices
Posted on 7/13/2011 by Delaware Family Voices
Thank you for visiting DE Family Voices: Family to Family Health Information Center. Please take a minute to explore our website. We have a lot of valuable resources and information. If you have any questions, please do not hesitate to contact us.
Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services for their child with special health care needs. These needs can be chronic and complex .Delaware Family Voices Family to Family Health Information Center is in a unique position to help families because we are parents who have children/youth and young adults with physical, developmental and mental health challenges. We understand the challenges families face. We have firsthand experience negotiating the maze of health care services and programs in our state. We know the issues you are facing and can help you to make informed decisions to achieve the best outcomes for your family.
We help by supporting families with children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by a federal grant.
For posts like these and more, visit our blog.
Faith Victory Christian Center's backpack drive festival will provide 1000 free, new backpacks containing school supplies to children with special needs, homeless, underpriviledged, foster, abused, and neglected children across the Delmarva region, as well as their siblings.
Details for the OYWBNP back-to-school bash: Flyer - On Your Way Back with a New Pack
Contact one of the following Faith Victory Christian Center Staff membersfor additional information:
Alvin at faithvictory@verizon.net or (302) 354-6729
Lisa at fvcc4him@gmail.com, or (302) 333-8981
Additional information can also be found at our Blog post, On Your Way Back With A New Pack.
Did you know that the Delaware State Parks systems offers an Assistance Program for an Annual Pass? If you are a Delaware resident and are currently receiving assistance from a State Service Center, you may be eligible to purchase an annual state park pass for only $10. This pass allows the vehicle it is attached to, and up to six occupants of that vehicle, unlimited entries to all Delaware State Parks during the fee season.
To learn more about this program, read our Delaware State Parks Assistance Program blog post.
Mobile wireless emergency alerting capabilities will be available nationwide through participating carriers.
Hurricane Season began June 1, and the Federal Emergency Management Agency (FEMA) has a system that sends severe weather alerts to people on their cell phones. Wireless Emergency Alerts (WEAs) look like a text message, and will automatically appear on the mobile device screen showing the type and time of alert, along with any action that should be taken. Check with your cellular carrier to see if WEA alerts are available in your area. Read FEMA’s emergency preparedness tips for people with disabilities in English or Spanish.
Read the complete details at FEMA Urges Preparedness for Hurricanes and Severe Weather
Visit Disability.gov for more emergency preparedness tips and information about the importance of including people with disabilities in planning for emergencies and disasters. Visit Disability.Blog for news and stories about preparing for emergencies.
Looking for Delaware parents and guardians of children ages ten and under diagnosed with autism spectrum disorders to participate in a dissertation study.
Posted on 6/12/2012 by Delaware Family Voices
If your child has been diagnosed in the past 1-5 years with an autism spectrum disorder and you are a resident of the state of Delaware, you are invited to participate in an interview regarding autism. The purpose of this research study is to learn about parent experiences with the identification, diagnosis, and support of their child’s autism.
Participants will be interviewed for approximately one hour. All interviews will be confidential and your name will not be included in the final paper. This project request has come to us from the Healthy Delawareans with Disabilities
Center for Disabilities Studies, University of Delaware
For more information, please contact Tracy Mann at TLM@udel.edu
Suicide Prevention Resources Page Added
Posted on 2/16/2012 by Delaware Family Voices
We have added a new page to the resources section of our website. This new page is Suicide Prevention Resources. Currently the page lists information on two programs: Lifelines and Let's Talk. We will continue to expand this list of resources, so stay tuned.
Not My Kid: What Every Parent Should Know
Posted on 2/11/2012 by Delaware Family Voices
The Society for the Prevention of Teen Suicide (SPTS) has produced a video called “Not My Kid: What Every Parent Should Know” which can be viewed at the following link:
http://www.sptsusa.org/parents/video/spts_parent_video.html
As per their website The mission of the Society for the Prevention of Teen Suicide is to reduce the number of youth suicides and attempted suicides by encouraging overall public awareness through the development and promotion of educational training programs for teens, parents and educators.
Donate to Delaware Family Voices
Posted on 2/09/2012 by Delaware Family Voices
We are a 501 C 3 non profit organization and ask for your support so that we may continue our programs that serve families and their children with special health care needs.
Does your workplace participate in a United Way campaign? Then you can designate your pledge to Delaware Family Voices, Inc. through United Way’s Donor Choice Program. Write-in our name and address or code # . 12691
Contact your human resources department or local Delaware United Way agency for more detailed instructions about giving a gift to us through a Delaware United Way campaign.
Delaware Family Voices is pleased to announce the publication of the second edition of Connecting the Dots. Connecting the Dots is a guide to finding services for children and adults with disabilities and special health care needs in Delaware. To obtain your copy of this helpful guide contact Delaware Family Voices today!
Newborn Screening Program
Posted on 9/27/2011 by Delaware Family Voices
The Newborn Screening Program was developed in Delaware to test newborns for rare conditions that, without this screening process, would remain undetected. Many of these conditions can be better treated if they are caught early but could be harmful to your child if not treated properly. Read more on our blog [...]
 
This Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by the Patient Protection and Affordable Care Act of 2010.
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