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*Click the image above to register for Delaware's Special Needs Voluntary Registry*
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Welcome to Delaware Family Voices
Posted on 7/13/2011 by Delaware Family Voices
Thank you for visiting DE Family Voices: Family to Family Health Information Center. Please take a minute to explore our website. We have a lot of valuable resources and information. If you have any questions, please do not hesitate to contact us.
Care of children with special needs can be chronic and complex. Parents and caregivers often struggle to find the resources and services for their child with special health care needs. These needs can be chronic and complex .Delaware Family Voices Family to Family Health Information Center is in a unique position to help families because we are parents who have children/youth and young adults with physical, developmental and mental health challenges. We understand the challenges families face. We have firsthand experience negotiating the maze of health care services and programs in our state. We know the issues you are facing and can help you to make informed decisions to achieve the best outcomes for your family.
We help by supporting families with children with special needs to become informed, experienced, self-sufficient advocates for their children and themselves. There is no charge for the services we provide. We are funded by a federal grant.
For posts like these and more, visit our blog.
Posted on 5/10/2012 by Delaware Family Voices
Camp Minto in New Castle County and Camp Lenape for Kent/Sussex County are looking for volunteers and campers! The camp runs from July 2nd to August 10th (Monday-Friday) from 7:00am-6:00pm. They are accepting campers from age 3-21 (with disabilities) and 5-13 (without disabilities). For more information view the flyer.
Posted on 4/19/2012 by Delaware Family Voices
Practic Without Pressure has announced it's Third Annual Blues Benefit. The benefit will take place on April 21st from 4-10pm. For more information visit our events page.
Posted on 4/10/2012 by Delaware Family Voices
Nurses 'n Kids has released a flyer detailing their summer care program for Summer 2012. This is a summer care program for children with special medical needs and developmental delays. The program provides nurses, PT, OT, ST, teachers and Dietitians as well as snacks, breakfast, lunch and transportation. Full and part-time spaces are available. For more information please view the flyer.
Posted on 4/10/2012 by Delaware Family Voices
Are you a young adult, parent, caregiver or advocate of a young adult with a disability or special health care need? Are you concerned about what will happen when you or the person you are caring for reaches adulthood (a process frequently referred to as "transition")? If you answered "yes" to the two questions above, we want to hear what you have to say! View more information on the April 19th and 20th event on our events page.
Posted on 4/4/2012 by Delaware Family Voices
Are you a young adult, parent, caregiver or advocate of a young adult with a disability or special health care need? Are you concerned about what will happen when you or the person you are caring for reaches adulthood (a process frequently referred to as "transition")?
If you answered "yes" to the two questions above, we want to hear what you have to say!
When: 9:30-11:30am
Where: April 19th - Easter Seals, 61 Corporate Circle, New Castle, DE 19720
April 20th- The Biden Center, located within Cape Henlopen State Park*, 42 Cape Henlopen Drive, Lewes, DE 19958
View the flyer to find out more information.
- Deadline to RSVP if accommodations are needed-April 5
- Deadline to RSVP if no accommodations are needed-April 18
Posted on 3/22/2012 by Delaware Family Voices
At this special Saturday game for the Wilmington Blue Rocks on April 28th, wear your green and join the Delaware Division of Prevention and Behavioral Health Services (DPBHS) for a kickoff to Children’s Mental Health Awareness Day. The Blue Rocks will take on the Winston-Salem Dash to increase awareness for the importance of children's mental health.
If you purchase tickets with this flyer, PROCEEDS WILL BENEFIT DELAWARE FAMILY VOICES.
Posted on 3/20/2012 by Delaware Family Voices
From Standupforhealthcare.org: Supreme Court Central
Shortly after President Obama signed the Affordable Care Act into law, anti-health care Republicans filed suit in federal court, trying to block the law from taking effect.
Make no mistake – the law is on solid legal ground. In fact, 19 courts have dismissed challenges to the Affordable Care Act, but that hasn’t stopped these ideologues from dragging out the process in the hopes of scoring political points with their base.
On March 26-28, the Supreme Court will hear arguments on the law, with a ruling expected this summer. We’re confident the Court will uphold the Affordable Care Act, but we can’t take this challenge lightly.
That’s why we’ve created this Supreme Court Update Center. Here, you can learn all about the case – from the key players and the arguments to how lower courts have ruled. And, most importantly, this is where you can find out what you can do to show the Supreme Court that you support our health care rights and want to see them upheld!
Visit the website
Posted on 3//16/2012 by Delaware Family Voices
From MobilityWorks.com: The National Mobility Equipment Dealers Association and MobilityWorks is taking part in a celebrating the upcoming National Mobility Awareness Month. As part of the awareness campaign, NMEDA is giving away 3 handicap accessible vans: A Chrysler Town & Country, Honda Odyssey and Toyota Sienna - all wheelchair accessible conversions from leading manufacturers BraunAbility and VMI.
Click here for more information and entry.
Del. AG Beau Biden Announces YouTube Contest for High School Students
Posted on 2/29/2012 by Delaware Family Voices
From a press release: WILMINGTON, Del.- Delaware Attorney General Beau Biden said Monday that the state Department of Justice's Senior Protection Initiative has launched a statewide video contest for high school students.
According to Biden, the contest, "Connecting Generations: Compassion in Action," is designed to raise awareness of senior abuse among younger Delawareans. The competition is open to all students enrolled in Delaware high schools or home schooled in Delaware and will run through April 15.
Read more and download the entry forms from our blog.
Suicide Prevention Resources Page Added
Posted on 2/16/2012 by Delaware Family Voices
We have added a new page to the resources section of our website. This new page is Suicide Prevention Resources. Currently the page lists information on two programs: Lifelines and Let's Talk. We will continue to expand this list of resources, so stay tuned.
Not My Kid: What Every Parent Should Know
Posted on 2/11/2012 by Delaware Family Voices
The Society for the Prevention of Teen Suicide (SPTS) has produced a video called “Not My Kid: What Every Parent Should Know” which can be viewed at the following link:
http://www.sptsusa.org/parents/video/spts_parent_video.html
As per their website The mission of the Society for the Prevention of Teen Suicide is to reduce the number of youth suicides and attempted suicides by encouraging overall public awareness through the development and promotion of educational training programs for teens, parents and educators.
Donate to Delaware Family Voices
Posted on 2/09/2012 by Delaware Family Voices
We are a 501 C 3 non profit organization and ask for your support so that we may continue our programs that serve families and their children with special health care needs.
Does your workplace participate in a United Way campaign? Then you can designate your pledge to Delaware Family Voices, Inc. through United Way’s Donor Choice Program. Write-in our name and address or code # . 12691 Contact your human resources department or local Delaware United Way agency for more detailed instructions about giving a gift to us through a Delaware United Way campaign.
Project Hug
Posted on 2/10/2012 by Delaware Family Voices
This special project focused on providing warmth, smiles and hugs to children who are homeless or in foster care in Delaware has received so many wonderful items already, and we are still two weeks away from the deadline for donations. Read more information on the program on our blog...
CDC Releases New Immunization Schedule
Posted on 2/10/2012 by Delaware Family Voices
From the CDC website: Are your child's vaccinations up to date? The Schedules list the age or age range when each vaccine or series of shots is recommended. If your child (birth through 6 years old) or adolescent (age 7 through 18 years old) has missed any shots, consult the catch-up schedule AND check with the doctor about getting back on track.
Click to view the schedule.
Social Security Expands Compassionate Allowances Conditions
Posted on 10/16/2011 by Delaware Family Voices
From www.socialsecurity.gov: Michael J. Astrue, Commissioner of Social Security, today announced 13 new Compassionate Allowances conditions involving the immune system and neurological disorders. The Compassionate Allowances program fast-tracks disability decisions to ensure that Americans with the most serious disabilities receive their benefit decisions within days instead of months or years [to see the full press release and the list visit our blog]
Delaware Family Voices is pleased to announce the publication of the second edition of Connecting the Dots. Connecting the Dots is a guide to finding services for children and adults with disabilities and special health care needs in Delaware. To obtain your copy of this helpful guide contact Delaware Family Voices today!
Newborn Screening Program
Posted on 9/27/2011 by Delaware Family Voices
The Newborn Screening Program was developed in Delaware to test newborns for rare conditions that, without this screening process, would remain undetected. Many of these conditions can be better treated if they are caught early but could be harmful to your child if not treated properly. Read more on our blog [...]
 
This Family-to-Family Health Information Center was made possible by a grant through the U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. This grant program was established by the Family Opportunity Act of 2005, amended by the Patient Protection and Affordable Care Act of 2010.
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